Jo Posted August 26, 2012 Author Share Posted August 26, 2012 Many thanks, he had the dose on wednesday and is now feeling rough, it doesn't help that he is also coping with side effects of the radiotherapy which have now kicked in, a sunburn effect on his skin which I'm trying to ease with E45 cream. Hope he picks up like last time! Link to comment Share on other sites More sharing options...
NormanH Posted August 26, 2012 Share Posted August 26, 2012 This has some practical tips for the skin:http://cancerhelp.cancerresearchuk.org/about-cancer/treatment/radiotherapy/side-effects/general/radiotherapy-and-your-skin#react Link to comment Share on other sites More sharing options...
mogs Posted August 26, 2012 Share Posted August 26, 2012 I developed a bad urine infection with my first round of chemo so with every round after that within 24 hours I was given an injection of Neulasta which helps to build up all the right blood cells to fight infection. It was only 4 years ago I was having this treatment but it is almost a distant memory now, so it will get better, promise.If it is any help, I'm having radiotherapy at the moment for a second primary cancer(another 9 days to go from 25) and I've been advised to use only almond, or olive oil on my skin. I can't understand how that will help but, I have to say where the radiotherapy is directed the skin is just a nice tanned colour and as yet not burning.All the best to you both Link to comment Share on other sites More sharing options...
Jo Posted August 27, 2012 Author Share Posted August 27, 2012 He had 10 seances, to treat remaining cancer cells after they had removed a brain tumour,( the chemo is for the primary,) the effects didn't show till he had finished the treatment but apparently the effects from radiotherapy can take a while to manifest themselves. Deep joy. Many thanks for your good wishes, he is bearing up well. Link to comment Share on other sites More sharing options...
Jo Posted September 10, 2012 Author Share Posted September 10, 2012 Could I bother you again for another question? OH has 6 doses of chemo that take him up to mid Nov, he is assuming that there will be more after that, while I realise everyone's case is different, is it possible that the 6 doses might be it? I should mention he is being monitored after every two doses so presumably they will amend the amounts if needed. Link to comment Share on other sites More sharing options...
NormanH Posted September 10, 2012 Share Posted September 10, 2012 In my case the original idea was 6, and that was supposed to be it. In fact, because of the white cell problem I mentioned I never had the 6th, and when I asked my oncologist about this she said that as my tests and scans were all clear there would be no need.My 'protocol' had a name Folfox so I was able to look it up to understand it betterhttp://cancerhelp.cancerresearchuk.org/about-cancer/treatment/cancer-drugs/folfoxIt is possible that Mr Jo's also has a name which you could search for, so it might be worth askingHowever if I have a relapse or another secondary etc we would be back at square 1, so I still have my PAC.This is just a precaution. Link to comment Share on other sites More sharing options...
Jo Posted September 11, 2012 Author Share Posted September 11, 2012 Thank you NormanH, that's very helpful. I'll ask next time and see if OH's has a name, he had his first lot of scans yesterday to check his progress so the results of that should let us know more. Link to comment Share on other sites More sharing options...
Jo Posted December 19, 2012 Author Share Posted December 19, 2012 Well a bit further down the line, boy! what a journey!! He was taken off chemo to try a new therapy which would also help the cancer of the brain as well as addressing the bone and lung cancer, he was told it didn't have the same side effect as chemo, too right, much worse! He has had a terrible amount of pain which they have thrown painkillers at, that sent him do lally and he ended up being re-admitted at the start of this week. they have now got the pain under control, but he is very confused, I am hoping this is the medication, or possibly the ongoing effect of the radiotherapy which I was told would last till January, and not the start of a new tumour. Fingers crossed eh? Link to comment Share on other sites More sharing options...
andyh4 Posted December 19, 2012 Share Posted December 19, 2012 Fingers crossed here as well for you both Link to comment Share on other sites More sharing options...
NormanH Posted December 19, 2012 Share Posted December 19, 2012 I am sorry to hear that he has had so much pain.There might be something useful herehttp://www.cancer-pain.org/or herehttp://www.cancerresearchuk.org/cancer-help/coping-with-cancer/coping-physically/pain/types-and-causes-of-cancer-painMy best wishes too. Hoping he gets some relief. Link to comment Share on other sites More sharing options...
Jo Posted December 19, 2012 Author Share Posted December 19, 2012 Many thanks for your good wishes both of you, it means so much knowing I can come on here and talk to people who have been through the same thing. Thank you NormanH for your ever useful links you really are a mine of information, they seem to have got it under control at the moment, it's just the confusion that has us worried, hopefully scans due will give us some results. Link to comment Share on other sites More sharing options...
mint Posted December 19, 2012 Share Posted December 19, 2012 Jo, I am deeply sorry to hear this. As you know, I did know that he wasn't well a couple of years back. And it is terribly sad he is now so poorly.I shall be thinking of you both....[kiss] Link to comment Share on other sites More sharing options...
CBC65 Posted December 20, 2012 Share Posted December 20, 2012 JoSending positive thoughts and best wishes for a swift answer to your concerns.CBC65 Link to comment Share on other sites More sharing options...
NormanH Posted December 20, 2012 Share Posted December 20, 2012 "it means so much knowing I can come on here and talk to people who have been through the same thing"I haven't been though as much as your husband, but please don't hesitate to send a pm if you want to talk something through .. Link to comment Share on other sites More sharing options...
Jo Posted January 29, 2013 Author Share Posted January 29, 2013 Despite the original optimism my OH lost his fight with cancer and passed away. Thanks to everyone on the forum for your help and support. It has been invaluable. Link to comment Share on other sites More sharing options...
NormanH Posted January 29, 2013 Share Posted January 29, 2013 I really am most terribly sorry to hear that. You have my deepest sympathy Please don't hesitate to ask if we can help with anything else. As you know there are other people who have also had very sad experiences and may be able to give practical advice. Link to comment Share on other sites More sharing options...
mint Posted January 29, 2013 Share Posted January 29, 2013 Jo, I am hugely saddened at your news and I hope that you are receiving all the support and help that you might need. Link to comment Share on other sites More sharing options...
CBC65 Posted January 30, 2013 Share Posted January 30, 2013 JoSad news, indeed. My sincere condolences to you. Link to comment Share on other sites More sharing options...
suein56 Posted January 30, 2013 Share Posted January 30, 2013 Oh Jo, I am so sorry to hear your news.Please know we are thinking of you.Sue Link to comment Share on other sites More sharing options...
Poppy Posted January 30, 2013 Share Posted January 30, 2013 Sooo sorry Jo. Going through something similar so please please please pm me if you want to talkI really do know how you feel xxxxxxxx Link to comment Share on other sites More sharing options...
mogs Posted January 30, 2013 Share Posted January 30, 2013 Jo, I was so sorry to read about your husband's passing it seems so quickly too which for you must be very hard to deal with.Sincere condolences, I have a very good listening ear if you ever want to PM!How are you coping, with all the practicalities of a death and surviving away from family can be difficult, there are many of us here you can rant to if need be.So sorry! Link to comment Share on other sites More sharing options...
Jo Posted January 31, 2013 Author Share Posted January 31, 2013 Many thanks for all the kind thoughts and words, poppy if you are going through the same thing my heart goes out to you.It was quick mogs, he didn't die of the cancer, but of a stroke he had the day before. I'm pleased for him as it was the bone cancer that was spreading and I understand that is very painful, at least he was spared that. I still have my two sons out with me at the moment, they go back Sunday I'm sure it will feel pretty weird then, but I have some lovely friends. Link to comment Share on other sites More sharing options...
Rabbie Posted January 31, 2013 Share Posted January 31, 2013 So sorry to hear your sad news. Thinking of you and your family. At least you have some good friends when your sons go home. Link to comment Share on other sites More sharing options...
idun Posted January 31, 2013 Share Posted January 31, 2013 I'm so sorry to hear your sad news. Link to comment Share on other sites More sharing options...
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