Tony F Dordogne Posted January 19, 2007 Share Posted January 19, 2007 Hi folksAs a result of complications with my leukemia thing, I may have to part company with my spleen. I'll spare you the gory details other than to say it's about 8/9 times bigger than it should be, making me quite unwell and is a major complication for me. Depending on what it's actually done inside me (like welded itself to other bits, grown babies (which it can do with my condition)), the effects of having the splenectomy can be radical.I use a Forum for people with my sort of condition and they hve a database of specialists. Two names in France:Prof Najman, Hospital St Antoine, ParisProf Jean-Luc Demory, C H St Vincent, LilleDoes anybody have any experience of these two guys or haem departments as I need to think about their survival rates etc? I'm also searching the Internet for information on them. Link to comment Share on other sites More sharing options...
PossumGirl Posted January 19, 2007 Share Posted January 19, 2007 Tony, I can't help but I just wanted to tell you that I'll keep you in my thoughts while you go through this whole thing. I'm sorry that you have to deal with it at all.PG Link to comment Share on other sites More sharing options...
Dick Smith Posted January 19, 2007 Share Posted January 19, 2007 I can't be of any help at all (so no change) but just want to wish you good luck and hope that all goes well. Link to comment Share on other sites More sharing options...
Lori Posted January 19, 2007 Share Posted January 19, 2007 I'm afraid I too don't know the Doctors or hospitals in question. Have you considered calling the hospitals and asking them some specific questions. It might be worth a try.Good luck to you. Link to comment Share on other sites More sharing options...
redmike Posted January 19, 2007 Share Posted January 19, 2007 I thought I would just say that my wife has Gaucher's disease (some years ago people with this condition were diagnosed as Leukaemia sufferers). There is no cure as yet but all sorts of medication help her out. She had her spleen removed 25 years ago and is still going strong. She has to be careful about infections and obviously some parts of the world are out of bounds. She has also produced a healthy girl during that 25 year period.Dont know if this helps allay some fears. I wish you all the best for a long and healthy life. Link to comment Share on other sites More sharing options...
Patf Posted January 19, 2007 Share Posted January 19, 2007 Tony - sorry can't answer your questions, but hoping the doctors do a good job with you and you're feeling better soon. Do you remember "Your life in their Hands"? This is literally the case. Pat. Link to comment Share on other sites More sharing options...
Tony F Dordogne Posted January 21, 2007 Author Share Posted January 21, 2007 Many thanks for the kind thoughts etc folks, much appreciated.I've been in touch with the hospitals already and they have web sites etc. but I'd rather get an idea from people who have been treated there - according to current lists/scores my old UK hospitals score well but they're more like Dewhurst's than places of clinical excellence so I'd like to have contacted people who have used them.My life in their hands - it probably is at the moment still, went to a fete at the local Mairie this morning, on to the market where we sat outside a local resto and had coffee and wine with friends, business is booming, garden starting to sprout so too many positives to dwell on the might bes.And thanks again folks - Dick, if the worse comes to the worse, I'll leave my research projects to you! Link to comment Share on other sites More sharing options...
Russethouse Posted January 21, 2007 Share Posted January 21, 2007 I hope Dick is feeling immensely flattered - I have been the grateful recipient of some of your research assistance and I have my fingers firmly crossed for you ! Link to comment Share on other sites More sharing options...
Dick Smith Posted January 21, 2007 Share Posted January 21, 2007 He is! Link to comment Share on other sites More sharing options...
Tony F Dordogne Posted January 21, 2007 Author Share Posted January 21, 2007 Of course the idea is Dick that you get it in 25 years or so! Link to comment Share on other sites More sharing options...
Renaud Posted January 21, 2007 Share Posted January 21, 2007 Tony, I too wish you all the best. If there are these two top specialists, I do not think that either would have risen to their current eminence on the basis of an 'oh whoops' track record so you can only believe that both are at the top of the profession. So what is better for you - Paris or Lyon?I also I don't think that you are going to get their track record or batting averages from the internet. Link to comment Share on other sites More sharing options...
Dick Smith Posted January 21, 2007 Share Posted January 21, 2007 [quote user="Tony F Dordogne"]Of course the idea is Dick that you get it in 25 years or so![/quote]At least - I'm hoping that the current records will be well out of date! Link to comment Share on other sites More sharing options...
Teamedup Posted January 22, 2007 Share Posted January 22, 2007 TonyF, you have given the names of two Professeurs, not just Doctors. I would hope that the fact that they have got to such elevated positions meant that they were real experts in their fields. Let's face it there aren't that many Professeurs around. I would think that both would be good. good luck Link to comment Share on other sites More sharing options...
Punch Posted January 22, 2007 Share Posted January 22, 2007 Hi TonyF,Have a look at this website - It may be of some help. http://www.lepoint.fr/special_hopitaux/doc_1759.html I know I looked it up when I had a back operation in France a few years ago. At the time, loads of French friends and aquaintances warned me off our local hospital for my operation, and to be frank I was terrified of a failure/c*ck up by the time I had the op, due to their scare tactics, so take any advice from unqualified people with a pinch of salt!Best and best of luck with your health ! Paul. Link to comment Share on other sites More sharing options...
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