Evianers Posted February 2, 2015 Share Posted February 2, 2015 Has anyone else suffered from this horrible malady please?Been hospitalised twice, had every conceivable test, four MRIs, lumbar puncture, cortisone drip and prednisone tablets. Thousands of Euros later [we cancelled our Mutuelle to "hospitalisation only" last September grrrrrrrrrr], there is very little improvement. New spectacles, numerous visits to two respected opthalmologists - am at my proverbial wits end to know what to do next.If anyone has any experience and/or suggestions, I should be so grateful for your input, for which many thanks in advance Link to comment Share on other sites More sharing options...
suein56 Posted February 2, 2015 Share Posted February 2, 2015 You have probably seen this but if you haven't then it is worth a read :http://www.mayoclinic.org/diseases-conditions/optic-neuritis/basics/definition/con-20029723Sue Link to comment Share on other sites More sharing options...
mint Posted February 2, 2015 Share Posted February 2, 2015 Sheila, I am so sorry to hear you have this painful sounding condition.I hope you have some relief soon.All the best Link to comment Share on other sites More sharing options...
Gardian Posted February 2, 2015 Share Posted February 2, 2015 Evianers ......Have pm'd you. Link to comment Share on other sites More sharing options...
Evianers Posted February 3, 2015 Author Share Posted February 3, 2015 Many thanks for the sympathetic responses and the private message.Yes, it seems that every avenue has been thoroughly investigated andthe reason why no effective treatment has worked is because the causecannot be found, ergo no specific method of cure can be embarked upon.The specialist equipment can definitely see that the optic nerve is veryinflamed, but why leaves everyone shrugging their shoulders.Oh well, we soldier on - another visit to the opthalmologist on 25/02 butmeanwhile "keep taking the prednisone" which I don't really like, and hopethat this eventually does some good.However, if anyone has any other suggestions other than those posted,I should be very, very grateful for help.Thank goodness it is apparently not MS - I am too old!!!! 69! Only timerecently that I have had THAT good news! Link to comment Share on other sites More sharing options...
NormanH Posted February 3, 2015 Share Posted February 3, 2015 A bit of a sidetrack but do be careful to keep a check on your Blood Pressure if you are taking prednisolone Link to comment Share on other sites More sharing options...
Pommier Posted February 3, 2015 Share Posted February 3, 2015 I can't offer any suggestions on the medical side, but why don't you ask your top-up insurer if you can upgade your cover. They don't seem to mind people doing that and at least you'd save some money! Link to comment Share on other sites More sharing options...
Evianers Posted February 3, 2015 Author Share Posted February 3, 2015 Thank you - but we have only just reduced the very expensive Mutuelle to hospitalisation only in September.Don't think they would like it if we suddenly increased it upwards again. Besides which, we have paid out thousands in the last three months, but hope that this will now diminsh Link to comment Share on other sites More sharing options...
idun Posted February 3, 2015 Share Posted February 3, 2015 I am so sorry to hear about this. We never know what the future holds, and I always reckoned that it was better in France to pay up, just in case, rather than have huge bills.I found this, that may help you decide on a new mutuelle, but I would always check that this 'rule' still works.Les mutuelles régies par le code de la mutualité ne font pas de sélection médicale, leur code l'interditPar contre, les mutuelles régies par le code des assurances (banques, assurances...) peuvent effectivement avoir ce critère de sélectionEn conclusion, pour rechercher une mutuelle, taper code de la mutualité dans le moteur de recherche internet...ce sera un premier critère de sélection.. Link to comment Share on other sites More sharing options...
Evianers Posted February 3, 2015 Author Share Posted February 3, 2015 Many thanks for the positive support and for the invaluable suggestions.It never hurts to express profound thanks, cost so little and hopefully means so much Link to comment Share on other sites More sharing options...
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